So went to my first Endo specialist appt today. After almost 2 hrs of talking and 10 minutes of extremely painful prodding (violation of section 1) ... MD says I have interstitial cystitis and pelvic floor dysfunction which is worse than the endo and the root of the pain not the endo. (Endo is just a little bit of it now). I need to go to Vienna every other week for pelvic floor therapy and bladder instillation therapy every week. Something that numbs my bladder). That's almost 2 hrs from my home). Got a bunch on new "herbally" MEDS for that. New diet for IC. Acupuncture later after therapy started. MD says to get the sigmoidoscopy (that was yesterday's GI appt...fun fun let me tell YA) because it can see rectal endo and if I do have that I will have to get a resection and colostomy because no surgery can fix that. Or I can leave it alone and risk perforation or BO )bowel obstruction). Pray it's not bowel related Endo pleasssssseeeee. Need to take probiotics for 15 days. As for the fatigue...I need to resolve inflammation throughout my body and I'll start to feel better. That's what the diet change and pelvic therapy will do. No surgery just yet (best news ever). I get to see a nutritionist which is covered by insurance. YAYYYYYY. I was denied that request by my family MD so all I'm saying is keep pushing for it ladies.
MD was amazing. Made my day. Answered almost 90% my questions before I asked and I had 6 pages of QUESTIONS! She was exceptionally knowledgable in her specialty.
Went to GI MD yesterday due to referral from my MD for rectal pain. I've been having it for 9 months now. They did an internal exam which I like to call violation of section 2 ... talk about awful. No hemorrhoids, but wants to do a flex sigmoidoscopy to check for fissure (not likely but has to check). Hope the hell not! Anyhow, that's exciting news for the Endo specialist because they can see rectal Endo that way, but again HOPE THE HELL NOT because then I have to get a bowel resection and colostomy OR can leave it be and risk perforation or BO (as stated above). Lord please be negative as well. She was kind enough to diagnose me with IBS...YAYYYYYY. more diagnoses. Just what I need. Ughhhh
Friday's Family MD appt I had more labs drawn AGAIN due to major fatigue. Thyroid level and D level were perfect as suspected. Dr is testing me for Lupus, RA, Arthritis and says she's pretty sure I have Raynaud's (my fingers turn a lovely shade of blue when I'm cold)...Labs to be done this week. (CRP, ANA, Rh factor, ESR) ... Praying for negative/perfect results on that too.
I just can't wait to start to feel better. I can't say enough how OVER I am of this feeling crappy. Im not used to this and I'm not loving it.
PRAYING on the daily!
